Using the sns, a validated tool for screening for narcolepsy with cataplexy. If your score is between 10 and 18 you have an excessive level of daytime sleepiness compared to the general population which may require further attention. Unusually prolonged rebound cataplexy after withdrawal of. Selfreport instruments for assessing sleep dysfunction in. Ten years ago today, i came out as a person with narcolepsy. Purpose the uns is an 11item scale designed to evaluate a variety of symptoms relating to narcolepsy, including frequency of daytime narcoleptic episodes, muscle weakness associated with powerful emotions, and nighttime sleep latency. For other ways to identify problematic sleepiness, see selfevaluation daytime sleepiness can have many causes, including narcolepsy, which affects up to 1 in 2,000 people. With the shift to rem sleep in narcolepsy, there might be hallucinations, cataplexy and sleep paralysis.
The ullanlinna narcolepsy scale uns was developed by hublin et al. Epworth sleepiness scale ess, the ullanlinna narcolepsy scale uns. The aims of the present study are 1 to assess the value of the sns in a new series of patients with narcolepsy with cataplexy nc, and 2 to compare its sensitivity and. Use features like bookmarks, note taking and highlighting while reading wide awake and dreaming. We show that ullanlinna narcolepsy scale has excellent sensitivity and specificity in the screening of narcolepsy type 1 in a clinical population. Swiss narcolepsy scale snscataplexy with narcolepsy. Population for testing the scale has been validated with both patient and control populations. Download it once and read it on your kindle device, pc, phones or tablets. Before your appointment, you may find it useful to record your symptoms in a diary or complete an epworth sleepiness questionnaire. We also show that if ullanlinna narcolepsy scale score is less than 9, narcolepsy is highly unlikely. Stimulant and anticataplectic effects of reboxetine in. Mar 04, 2001 narcolepsy is a chronic sleep disorder characterised by symptoms of excessive daytime sleepiness and cataplexy. The 11item scale range 044 assesses the two main features of the narcoleptic syndrome, the abnormal sleeping tendency and cataplexy.
By using the screening questionnaire ullanlinna narcolepsy scale uns at the initial stage and then followed by the phone interviews, polysomnography and hla typing of selected subjects. Narcolepsy has changed my life for better and 0 comments. Narcolepsy american academy of sleep medicine aasm. Awareness of narcolepsy is low and screening tools needed. The uns was an 11item scale that investigated the subjects two. An external file that holds a picture, illustration, etc.
In these episodes a person suddenly falls asleep in unusual situations, such as while eating, walking or driving. Sep 27, 2005 the ullanlinna narcolepsy scale score was 30 of 44 a score of 14 suggests narcolepsy, and the swiss narcolepsy scale score was. The uns is an 11item scale designed to evaluate a variety of symptoms relating to narcolepsy, including frequency of daytime narcoleptic episodes, muscle weakness associated with. Print out the ullanlinna narcolepsy scale pdf to assess your symptoms. About narcolepsy narcolepsy is a chronic neurological disorder that can begin at any age and continues throughout life. If your score is below 10 you have a healthy level of daytime sleepiness in comparison to the general population. The uns is an 11item scale designed to evaluate a variety of symptoms relating to narcolepsy, including frequency of daytime narcoleptic episodes, muscle weakness associated with powerful emotions, and nighttime sleep latency. Swiss narcolepsy scale narcolepsy with cataplexy test. Additional narcolepsy symptomsadditional narcolepsy symptoms please take a minute to answer the following questions to determine if you may suffer from narcolepsy.
Narcolepsy is a chronic neurological sleep disorder, the diagnosis of which is based upon clinical evaluation and additional paraclinical assessments. By controlling for this measure we were able to compare. Im julie flygare, a person living with narcolepsy with cataplexy. The epworth sleepiness scale ess, the ullanlinna narcolepsy scale uns, and more recently the swiss narcolepsy scale sns were used as screening tools for narcolepsy. Swiss narcolepsy scale sns kit order form thank you for your interest in the swiss narcolepsy scale sns the sns is designed to screen for narcolepsy with cataplexy in patients with excessive daytime. It is a sleep disorder, involving irregular patterns in rapid eye movement rem sleep, and significant disruptions of the normal sleepwake cycle. Created to assess individuals who may have narcolepsy with cataplexy. A total score above 14 is suggestive of narcolepsy with cataplexy. The uns is an 11item questionnaire that assesses eds and cataplexy, with 7. When laughing, feeling glad or angry, or in an exciting situation, have the following symptoms suddenly occurred. Instead, we rely on medication to control the symptoms, though for many people those drugs do not work well enough or have adverse sideeffects. First, the use of scales facilitates a quick and accurate assessment of a.
Sleep disorders are common are common following traumatic brain injury. Everyone with narcolepsy knows that, as things stand, there is no cure for the condition. About narcolepsy narcolepsy network narcolepsy network. There are at least four reasons why a sleep clinician should be familiar with rating scales that evaluate different facets of sleep. The gp will look closely at your medical and family history. Diagnostic aids such as a modified epworth scale and the ullanlinna scale are discussed. Sleep disorders associated with traumatic brain injurya. Comparison in symptoms between aged and younger patients.
Please circle the number that best describes each situation. Eds, sleep apnea, and restless legs symptoms with no difference between groups. For our study, sns was calculated with some adjustments from the basic nordic sleep questionnaire bnsq. Journal of psychosomatic research vol 49, issue 5, pages. Swiss narcolepsy scale has high utility in narcolepsy screening. Narcolepsy hypersomnias, journal of sleep research 10. The epworth sleepiness scale ess, the ullanlinna narcolepsy scale. Sleep complaints in 30% of patients and 10% of controls. Epworth sleepiness scale ess, the ullanlinna narcolepsy scale uns, and.
Spanning the latest advances in the field, this source covers current diagnostic procedures, ge. In some cases but not all it is an inherited condition. Narcolepsy scale uns is the most commonly used questionnaire. The box represents the interquartile range iqr and the median is marked by the central vertical line. The epworth sleepiness scale ess, the ullanlinna narcolepsy scale uns, and more recently the swiss narcolepsy scale sns were used as screening. Eleven questionnaire items assessing the main manifestations of narcolepsy formed a measure called the ullanlinna narcolepsy scale uns, which has been validated. Pdf narcolepsy is a chronic neurological sleep disorder, the diagnosis. Though awareness of the swiss narcolepsy scale sns remains low among clinicians. Selfreport instruments for assessing sleep dysfunction in an. Jul 11, 2007 narcolepsy is caused by a dysregulation of areas in the midbrain and brainstem, with a loss of orexin a neuropeptide function as a typical finding. Box plot graphics of the ullanlinna narcolepsy scale score distributions in patients with narcolepsy mean 27.
The ullanlinna narcolepsy scale named after the clinic in finland where it was developed is also a wellvalidated questionnaire for diagnosing narcolepsy with cataplexy. French nss questionnaire was translated into english for the readers of this article appendix. Narcolepsy can usually be diagnosed by observing how you sleep and ruling out other conditions. We prospectively assessed by questionnaire patients with nc. This sleepiness may occur in the form of repeated and irresistible sleep attacks. Several narcolepsyspecific scales have demonstrated utility, such as the ullanlinna narcolepsy scale, swiss narcolepsy scale, and narcolepsy symptom assessment. On november 10, 2009, i started this rem runner blog, disclosing on the internet for the first time that. Patients in the aged group showed lower total uns scores 21. A memoir of narcolepsy kindle edition by flygare, julie. Most frequent cataplexy triggers reported in a questionnaire survey of 109 patients with definite. The most popular abbreviation for ullanlinna narcolepsy scale is. Narcolepsy is a neurological sleep disorder that causes a potentially disabling level of daytime sleepiness.
The ullanlinna narcolepsy scale wiley online library. I sometimes experience muscle weakness or a loss of muscle strength when i laugh or get angry yes no a. Ullanlinna narcolepsy scale in diagnosis of narcolepsy. Selfreport instruments for assessing sleep dysfunction in an adult traumatic brain injury population. Maintenance insomnia more frequent in patients 52% versus 38%. Secondary narcolepsy caused by tumors in the hypothalamic region has been described in a few cases. There was no significant difference in eds between the two groups. Summary the ullanlinna narcolepsy scale uns is a simple questionnaire. The study comprised a postal survey of 500 members of the uk narcolepsy patient association, which included amongst other questions the uk short form 36 sf.
The epworth sleepiness scale ess, the ullanlinna narcolepsy scale uns, and more recently the swiss narcolepsy scale. Furthermore, a significant reduction in the cataplexy subscore of the ullanlinna narcolepsy scale and in remsleep was found. The ullanlinna narcolepsy scale score was 30 of 44 a score of 14 suggests narcolepsy, and the swiss narcolepsy scale score was. Narcolepsy is caused by a dysregulation of areas in the midbrain and brainstem, with a loss of orexin a neuropeptide function as a typical finding. In particular, the scores regarding cataplexy were significantly lower for the aged group. Swiss narcolepsy scale sns kit order form thank you for your interest in the swiss narcolepsy scale sns the sns is designed to screen for narcolepsy with cataplexy in patients with excessive daytime sleepiness. Use the swiss narcolepsy scale sns in combination with a clinical interview to screen for narcolepsy with cataplexy.
Comparison in symptoms between aged and younger patients with. The swiss narcolepsy scale sns helps determine if you may have narcolepsy with cataplexy. A validity study of ullanlinna narcolepsy scale in hong kong. However, as many as 10 percent of those with narcolepsy and cataplexy have close relatives who show symptoms of these conditions other risk factors and causes.
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